"There is no foot too small that it cannot leave an imprint on this world."

Prayer Works

For anyone who is a skeptic, prayers work.

Dave's mom had been in town since Wednesday of last week, and we just dropped her off at the airport. It was a blessing to have her here with us as we've been working through everything. We were relieved as much as she was to realize that we have a support group here larger than we thought. Our church has been so helpful and supportive. Today we were able to meet with a doctor for the first time and have a good discussion and have questions answered. Our doctor gave us a standing invitation to be her walk-in appointment at any time, and even offered to deliver if and when the time comes. She was sympathetic, compassionate, astute, and informative; she was everything we didn't receive when we were told about our baby's condition. She's willing to see me twice a month as I progress to check the baby's heartbeat. And in another answer to prayers, she told us that last week, their office received word of another clinic that can provide the same services, but hopefully with a better bedside manner. She's helping us work out how to file a formal complaint about the doctor we were referred to.

So, to review. Prayers answered this week:
1. Dave and I are still strong and maintaining a positive outlook.
2. We've found we have a stronger support system here than we thought through friends and church.
3. We've found a doctor who is on our side, is willing to work with us and support us and our decision not to terminate our pregnancy.
4. There is another clinic available for Lemoore to refer patients too so hopefully no one else will be treated the same way we were.

Dear friends,

I'm sorry to relay this news to you via email, but it's just too hard for me any other way right now.

About two weeks ago we did a screening test for development abnormalities for our baby. One of the results came back abnormal for the AFP test. With a 25% false-positive rate, and Dave and I being young and healthy, we were pretty sure it was nothing, maybe that the baby was older than the doctors had thought.

On Monday we had an appointment with a Fetal Maternal Medicine Specialist to do an ultrasound and received the worst news any expectant parent can receive: our baby has Trisomy 18. Her brain is filed with water, her heart is enlarged and has several problems, her arm bones are wrong, and her intestines and liver are on the outside. 

Trisomy 18 is a genetic non-hereditary disorder. It happens at conception and is random. Every pregnancy has a .075% chance of having it happen. The 18chromosome didn't split correctly and as a result, our baby has three parts of 18 instead of two. This has caused her to develop abnormally in almost every aspect.

There is an 80-90% chance that she will not make it to her birthday; if she does, there is a 10% chance she would survive; if she does survive, because of the complications she has, almost no chance that we would take her home. 

For us, terminating the pregnancy is not an option. I could carry to full term, or miscarry at any time. 

Dave and I are not ok. We canceled our trip to Germany, Dave's mom is coming today, and we are trying to work through what we need to be doing.  We are meeting with the pastor of our church this week, and planning to meet with a doctor to discuss out ultrasound results and more of what we can expect. 

What we really need right now is love, supportive words, and tons and tons of prayers. The most difficult part of our situation is that the hard part hasn't come yet. Please pray for the strength of our baby, and for strength for Dave and I as we work through this time. 

Love,

Annie&Dave

Prayer Request

Please pray for Dave and I and for our baby.